Jules is 16 and has OCNDS. OCNDS affects every aspect of her life.
Right now, there is no treatment or cure. But there is HOPE. The CSNK2A1 Foundation is working tirelessly to fund research that could change the future for children like Jules. This October 11–12, my family & friends will be participating in the Boundless Possibilities Run, Walk & Roll to raise funds for research in critical areas like sleep, speech & language, anxiety, intellectual disability, GI health, and drug repurposing.
A treatment would mean the world to us—it could help Jules speak more words,sleep through the night, have fewer medical interventions, and be more independent”. It would open doors for her to live with more comfort, joy, and opportunity.
I have set a personal goal to raise $2500, and I would be so grateful if you would consider supporting our family.
Every step, roll, and stride we take together brings us closer to Boundless Possibilities for Jules and the entire OCNDS community.
