Move to Cure STXBP1 Disorders 2025

Trailblazing Together with Love and Purpose

During September Awareness Month and beyond, we Move to Cure with purpose and love.

Every move we make holds the hope we share along with the urgency to keep pushing science forward. We move for every child and family affected by STXBP1, their stories are forever part of our journey.

Whether you join a team, host an event, or support from afar, your participation in Move to Cure matters.

This year, we have a bold and urgent goal: to raise $100,000. This is more than a fundraiser. It’s a promise. That we will never stop accelerating knowledge and supporting our families, and that we will always remember our reasons why.

WHAT - The STXBP1 Foundation is a 501c3 nonprofit dedicated to supporting families and advancing research for STXBP1 Disorders. We work to raise awareness, share trusted resources, and move progress forward—together.

Move to Cure is our annual movement to raise awareness of STXBP1 and raise critical funds that support our community and advance science for STXBP1 Disorders.

Families gather to walk, run, hike, or ride to support each other and the community. This year’s theme is Trailblazing Together, because no one is on this journey alone.

WHEN - From September STXBP1 Awareness Month—through Giving Tuesday, December 2—our community moves as one. Not just to raise funds, but to honor, to remember, and to carry forward our mission.

HOW - Start or Join a Move to Cure Team

Visit the Move to Cure event page
Click the maroon “Register – Join a Team” button above
Follow the prompts:
Create or log into your RunSignUp account
Add your name
Agree to the waiver
Choose to join a team (or start your own!)
That’s it! You're in. Visit your team page to check if your event is in-person or virtual—and start planning your fundraiser. 
 

2025 Move to Cure Shirts and Socks
SHIRTS: We’ve refreshed this year’s design, and shirts are shipped directly to your door!

Starting a team? Create a custom team shirt HERE, and add the link to your team page.
Joining a team? Check your team page for the shirt link and rep your crew with pride.

SOCKS: STXBP1 socks are back for a limited time! Add them for purchase when you register.

Registering vs. Donating — What’s the Difference?
Registering: You're signing up to participate (walk, run, ride, or rally!)

Your registration supports your team’s fundraising goal
You’ll appear as a team member
If it’s an in-person event, it helps your captain plan for gear and giveaways
Donating: You’re supporting charitably, but not joining a specific team

You won’t be listed as a team member
No participation needed—just your generous support!